Yesterday was another long day. Lizzy is looking stronger and is more awake and alert. She's still in a lot of pain and very uncomfortable, but we see improvement. Every time I make it up to her room, she looks stronger and better to me. Her biggest problem right now is that she's still not eating. To perform her surgery, they had to spread her neck muscles apart and they had a breathing tube down her throat. Those two things together cause really strong pain whenever she tries to swallow anything - even water. Late yesterday, she was able to drink some, but ended up throwing it all up later. So, until she is able to eat and keep something down, she'll remain in the PICU. She did rest a little better last night.
Adam is still in the hospital as well, but we think he'll be going home today -at least we hope. It's been hard for all of us since Tammy and I have both had to stay at the hospital all the time. The other kids haven't even seen us since Wednesday. As I mentioned yesterday, they are mostly worried about an obstruction, but haven't found anything. He had a CT scan yesterday which didn't show any problems. I think it's just a virus, but because of his history, they are being very cautious. He hasn't been allowed to eat anything since he arrived (nearing 36 hours), so he's hungry, but otherwise doing okay. I think they're going to let him eat today and may watch how that passes through before letting him go.
This morning a doctor came to Adam's room and said, 'We don't have the schedule yet, but we'll be coming to bring you to the OR later to get that gall bladder out'. I said, 'WHAT? I hadn't heard there was a problem with his gall bladder.'. He responded, 'Yeah, the scan yesterday showed that's what's been causing all the pain. He's passing stones down his tract and we're going to need to remove the gall bladder.' I said, 'This doesn't make any sense. They told us last night that there was nothing abnormal in his scan and they just wanted to observe him one more night. I thought we were going home this morning.'. 'No, I'm sorry, we're going to have to bring him to surgery today.'. I finally said, 'Are you sure you're talking to the right patient?'. He looks at his chart and then looks up sheepishly and starts apologizing. I just laughed ... After all we've been through the last few days, I was not at all surprised.
2 comments:
Wow! Glad you asked if he had the right patient!
Hope Lizzy begins to feel better soon. I'm so glad you're both able to be in the same hospital with Lizzy and Adam so you can still see both of them and each other.
Sending more hugs and prayers.
one day you'll look back and be able to laugh about all this?
Love, Auntie Ann
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